| Problems |
Stages of Dementiaa
|
| < 1 Year N=89 |
1-4 Years N=744 |
≥4 Years N=661 |
Total N=1494 |
p |
| Has problems dealing with changes in the behavior of the person with dementia |
75.9 |
79.1 |
78.0 |
78.4 |
0.73 |
| Dreads the person,s admission to a nursing home |
59.0 |
62.0 |
58.7 |
60.4 |
0.45 |
| The care for the person with dementia is often emotionally too demanding |
48.2 |
52.8 |
58.2 |
54.9 |
0.06 |
| Was not sufficiently familiar with available support options when the person was diagnosed with dementia |
46.6 |
47.0 |
51.0 |
48.7 |
0.30 |
| Is worried that the behavior of the person with dementia will cause unsafe situations in or around the house |
42.0 |
49.7 |
42.1 |
45.9 |
0.02 |
| Has less contacts with friends or acquaintances due to the illness of the person with dementia |
25.6 |
36.7 |
49.1 |
41.5 |
0.00*
|
| Cannot leave the care for the person with dementia to others when needed |
39.5 |
42.4 |
39.1 |
40.8 |
0.47 |
| Feels lonely |
23.3 |
36.9 |
47.0 |
40.6 |
0.00*
|
| Cannot adequately cope with the grief over the deteriorating situation of the person with dementia |
39.8 |
39.5 |
41.2 |
40.3 |
0.81 |
| Finds it hard to make decisions for the person with dementia |
45.3 |
39.3 |
39.4 |
39.7 |
0.55 |
| Thinks that health problems may occur because of the person’s difficulty with communicating physical ailments |
27.3 |
34.2 |
45.1 |
38.6 |
0.00*
|
| Has received insufficient information about the symptoms and progression of dementia |
34.5 |
33.9 |
41.8 |
37.4 |
0.01 |
| Has the feeling of being on his/her own in caring for the person with dementia |
31.8 |
36.1 |
38.6 |
36.9 |
0.38 |
| Does not sufficiently know how to deal with the person’s resistance |
39.3 |
37.7 |
32.0 |
35.3 |
0.07 |
| The care for the person with dementia is often physically too demanding |
14.9 |
27.7 |
37.0 |
31.0 |
0.00*
|
| Contacts with relatives have been diminished due to the illness of the person with dementia |
16.1 |
24.3 |
36.3 |
29.0 |
0.00*
|
The questionnaire addressed a total number of 35 problems. This table reports the problems most frequently mentioned by informal caregivers.
* Differences between the stages of dementia are statistically significant (chi-square test, p < 0.01)
aEvaluated by the informal caregiver